Inactive
Finances:
Objects:
1. the relief of physical and mental suffering of persons suffering from dystrophic epidermolysis bullosa and other related medical conditions.2. the provision of practical advice guidance and help for the persons responsible for the welfare of such persons3. to promote research for the benefit of the public into the nature, cause, treatment, and cure of dystrophic epidermolysis bullosa and other related medical conditions and to publish the useful results of such research: and 4. to raise public awareness of the said condition through information concerning the life and death of the late jonny kennedy and in his memory.
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