Website: http://www.fanconihope.org
Finances:
Objects:
1. to support a uk fanconi anaemia national registry so as to ensure fanconi anaemia affected children and their families are kept track of and provided with the best care.2. to promote awareness and understanding of fanconi anaemia among affected families, the medical profession and the general public.3. to encourage translational research that might directly benefit fanconi anaemia related children and their families.4. to encourage research in the area of fanconi anaemia that might have bebefit for the general public, e.g. in the treatment of cancers in general.
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