Website: http://www.noonansyndrome.org.uk
Finances:
Objects:
the relief of all persons affected by noonan syndrome by all or any of the following means:-1) the facilitation and promotion of research into the causes, effects, diagnosis, treatment and relief of noonan syndrome with the useful results of the research being disseminated for the benefit of the public;2) the provision of facilities, financial aid, advice and support services for persons suffering from noonan syndrome, their families, dependants and carers, including the families and dependants of those who have died from noonan syndrome and pregnant mothers where it is believed that their child is in danger of being born with noonan syndrome; and3) by advancing the education of the public in relation to the effects of noonan syndrome by communicating reports and disseminating information by any means or media concerning research work and studies undertaken by or on behalf of the charity.
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