Website: http://www.fopfriends.com
Finances:
Objects:
the relief of distress and sickness for those affected by fibrodysplasia ossificans progressiva (fop) a tragic, degenerative and debilitating condition and to improve the lives of sufferers and their families.to raise public awareness and understanding of fibrodysplasia ossificans progressiva (fop) and to promote education and research into the study and cure of fop and related conditions.to support charities and organisations undertaking charitable activities in both the uk and abroad who fund research, provide help, support, care and treatment for people affected by fop and related conditions.to support organisations researching treatments and a cure for fop and related conditions.
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