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Alport Uk

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Website: http://alportuk.org

What does this charity do?

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facilitation

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syndrome

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uk and internationally

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registry

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syndrome patients

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carers patients

Finances:

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Objects:

the objects of the cio are the relief of sickness and the promotion of health of those people suffering from alport syndrome, in particular, but not exclusively by: (a) the establishment and facilitation of a support network for alport syndrome patients, carriers, their families and carers; (b) the provision of information on alport syndrome; (c) the support of research into alport syndrome both in the uk and internationally;(d) the support of a research registry in the uk and an international alliance of national registries.

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