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The Lacey Pearl Trust Fund

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Website: http://www.laceysfight.com

What does this charity do?

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mitochondrial disease

Finances:

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Objects:

to relieve the needs of children suffering with mitochondrial disease and to promote their physical and mental health in particular but not exclusively by:(a) directly supporting the families who care for children with mitochondrial disease at home through the provision of medical equipment (under advisement), sensory play equipment (the aim of which is to help enrich and improve the quality of life of their child) and/or by providing financial aid and other support as the trustees see fit (providing it is directly linked to the child's care, health and well being); and (b) promoting and raising awareness of mitochondrial disease through advertising, public speaking and social media.the charity will operate in england and wales.

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