Website: http://www.sdsuk.org
Finances:
Objects:
to provide relief to patients and families in the uk (including scotland and northern ireland) who are affected by shwachman-diamond syndrome (sds) in particular but not exclusively by:? promoting access to health and educational services for affected patients throughout the uk,? supporting research into the pathophysiology of sds and its current and potential treatment and the public dissemination of the useful results thereof, and? providing and encouraging others to provide educational resources and activities about sds for the benefit of families, professionals and the public, both nationally and internationally.
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