Website: http://www.hopeforhh.org
medical profession
symptoms
effects and treatments
care givers
early diagnosis and treatment and disseminating
Finances:
Objects:
the relief of persons suffering from hypothalamic hamartomas by* increasing awareness about hypothalamic hamartomas within the medical profession.* raising awareness of the symptoms, effects and treatments.* promoting research into early diagnosis and treatment and disseminating the useful results thereof.* the provision of information and support to sufferers and care-givers.
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