Website: http://dcaction.org
Finances:
Objects:
the objects of the cio are:1. to preserve and protect the health of patients with dyskeratosis congenita and other telomere disorders, by providing and assisting in the provision of facilities, support services and educational materials not normally provided by the statutory authorities. to advance the education of the public by the publication of a website, newsletters, information sheets and other materials.2. to promote and protect the physical and mental health of those affected by dyskeratosis congenita through the provision of advocacy, support, education and practical advice.3. to advance the education of the general public, medical and scientific professionals in all areas relating to dyskeratosis congenita and other telomere disorders.
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