Website: http://www.pitthopkins.org.uk
Finances:
Objects:
to relieve the needs of children and young people diagnosed with pitt hopkins syndrome,their families and carers by:1.increasing the profile of pitt-hopkins syndrome for public benefit by raising awareness of pitt-hopkins syndrome. 2.supporting families having a diagnosis of pitt-hopkins syndrome by providing information and funding to facilitate opportunities and means to communicate with each other and to exchange experiences and advice. 3.promoting understanding of pitt-hopkins syndrome by providing information to medical and social professionals. 4.supporting research into pitt-hopkins syndrome, in particular natural history studies and breathing anomalies and the dissemination of the useful results of that research.
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