Website: http://lamaction.org
Finances:
Objects:
"1) to provide support and information for those with lymphangioleiomyomatosis (""lam"") and their families; 2) to support research which furthers understanding of lam, including the cause of lam and potential treatment for lam in accordancewith regulatory requirements; 3) to increase awareness amongst health professionals about how lam presents and where support for those diagnosed with the disease can be obtained, and to promulgate good clinical practice for the management of lam amongst health professionals; 4) to share research, clinical and patient support experience with other medical, patient and research groups in the uk and overseas."
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