Website: http://www.thesilentbleed.co.uk
Finances:
Objects:
(a) for the public benefit, to advance education of everyone about the rare disease superficial siderosis - specifically sufferers of the disease, their carers and their physicians. to also help fund ongoing, established and new medical and scientific research into superficial siderosis, by providing grants and establishing networks of professionals and patients through our website and social media.(b) to advance health and save lives through: information dissemination to superficial siderosis sufferers, carers and their physicians; in order to support sufferers in getting access to the medical care and treatments they need. we will do this through our website, printed leaflets and other material and by organising social and virtual events using social media.(c) the relief of those in need by reason of disability by providing advice and emotional support to sufferers, their carers and physicians. we will do this through our website, printed leaflets and other material and by organising social and virtual events using social media.(d) the charity is for the benefit of superficial siderosis sufferers, their carers and their physicians worldwide, not just in the uk.
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