Website: http://www.sandcastletrust.org
Finances:
Objects:
for the public benefit, the relief of sickness of those with a rare genetic condition and in particular to help and support families living within the uk whereby a member or members of that family have been diagnosed with a rare genetic condition. particular emphasis is placed on enhancing their family life by(but without limitation):(a) the provision of accessible holidays;(b) the provision of accessible day trips;(c) the provision of grants to assist families plan their own accessible family holiday;(d) assisting in the provision of care for the individual(s) with the genetic condition whilst on theholiday/day trip if required;(e) respite for carers either by way of a grant, holiday or day trip away from their caring role; and(f) the provision of support and information on accessible holidays generally to families affected by raregenetic conditions.
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