Krabbe Uk

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bereaved families

newborn screening

Finances:

Objects:

the objects of the cio are to relieve sickness and preserve and protect the health of children and adults suffering from krabbe disease in the united kingdom, in particular but not exclusively by supporting and funding research and promoting the extension of newborn screening for krabbe disease.to preserve and protect the health of the families caring for children and adults suffering from krabbe disease in the united kingdom by such means as the trustees may determineto support bereaved families who have lost family members to krabbe disease in the united kingdom by such means as the charity trustees may determine.

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