technical advice to government
healthcare professionals
commenting on proposed
physical and mental health of sufferers of mitochondrial disease
Finances:
Objects:
"for the public benefit, to promote and protect the physical and mental health of sufferers of mitochondrial disease and their families and carers by all or any of the following means:(1) providing financial support for research into methods of diagnosis, treatment and management for mitochondrial disease and related services, and to help publish and disseminate the findings of such research;(2) raising awareness about all and any issues related to mitochondrial disease among the public, media, legislators and amongst healthcare professionals;(3) providing technical advice to government and others on matters related to mitochondrial disease, and commenting on proposed or existing legislation impacting serious medical treatment cases; and(4) providing families living with mitochondrial disease with information and support, including financial support where possible.for the purposes of this clause ""mitochondrial disease"" means any of the group of chronic, genetic disorders caused by dysfunctional mitochondria and ""serious medical treatment case"" has the same meaning as given in practice direction e, supplementing part 9 of the court of protection rules, 2007.nothing in this constitution shall authorise an application of the property of the cio for the purposes which are not charitable in accordance with section 7 of the charities and trustee investment (scotland) act 2005 and section 2 of the charities act (northern ireland) 2008."
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