Website: http://joinusatworld.com
Finances:
Objects:
the preservation and protection of good health for the public benefit in west wales, specifically the counties of pembrokeshire, ceredigion and carmarthenshire, by promoting the awareness and understanding of rare lung diseases through such means as the trustees think fit including:-providing a forum for rare lung disease patients and their carers to meet and share experiences;-offering emotional and educational support to rare lung disease patients, their families and carers including signposting to other relevant bodies;-engaging respiratory specialists to refer other patients to the forum;
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