Website: http://www.bbsuk.org.uk
Finances:
Objects:
the objects of the cio are:(a) to preserve and protect the health and promote the welfare of persons diagnosed with bardet-biedl syndrome and their families;(b) to advance the education of the medical and educational professions and the general public on the subject of bardet-biedl syndrome and its implications for the family and to promote research for the public benefit in all aspects of that subject and to publish the useful results.
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