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The 1p36 Family Trust

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Website: http://www.1p36.co.uk

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symptoms

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p deletion syndrome and their families

Finances:

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Objects:

the objects of the cio are:the advancement of health for the public benefit by the provision of support to children and adults affected by 1p36 deletion syndrome and their families in the uk, in particular, but not exclusively by arranging a conference to share research and practise concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.

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