Website: http://xlhalliance.org
Finances:
Objects:
the preservation of good health among sufferers of x-linked hypophosphatemia and related disorders by:a) supporting research for the public benefit into the causes, prevention, diagnosis and methods of treatment of x-linked hypophosphatemia and related disorders and publishing the useful results of that research;b) provision of a support network for families suffering from the effects of x-linked hypophosphatemia and related disorders; c) advocating early diagnosis and well-managed treatment of x-linked hypophosphatemia and related disorders.
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