Website: http://www.pompe.uk
Finances:
Objects:
to relieve sickness of children and adults suffering from pompe disease in the united kingdom and throughout the world, in particular but not exclusively by: (a) contributing to the advancement of quality research & education in respect of pompe disease; and (b) providing information, advice and support to such individuals, their families and carers by such means as the trustees may determine 2. to relieve the needs of bereaved families who have lost family members to pompe disease in the united kingdom by such means as the trustees may determine
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