Website: http://hypermobility.org
Finances:
Objects:
the object of the cio is:for the public benefit to preserve and protect good health among, and relieve the needs of, people affected by hypermobility syndromes, in particular by:1) providing validation, education, rehabilitation and positive self-management advice for people with hypermobility related disorders and their entire support network, including their families, teachers, friends and colleagues. encouraging a culture of support while raising awareness, knowledge and self-determination. 2) improving the quality of life, and enabling effective self-management for affected individuals through a variety of resources, including (but not limited to): self management programs, support groups, social media, publications, helpline and support from our expert patient volunteers. 3) working with and educating the relevant medical, social and health professionals in developing awareness and understanding of the biopsychosocial impact of hypermobility related disorders for individuals and their entire support network. 4) supporting and encouraging individuals in their pursuit of diagnosis and treatment, via signposting to appropriate services where necessary. 5) providing an environment which enables people affected by a hypermobility syndrome to volunteer, furthering the charity’s aims whilst developing their own workplace skills and confidence. 6) maintaining the information standard, as was accredited by nhs england, so as to ensure the high standard of all hmsa publications in whichever format deemed suitable. 7) working with other organisations to undertake and promote research into hypermobility related disorders, the useful results of which will be published for the public benefit. to seek to be the patient partner and to disseminate research, surveys and investigations whilst maintaining our high standard of information. 8) collaborating with other organisations on policies, strategies and projects, which are synergistic with the cio’s own strategy and values.
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