Website: http://www.myhresyndrome.com
raise awareness
medical practices
syndrome and their families
syndrome
diagnoses and treatment
reside in the uk
Finances:
Objects:
1) the relief of sickness and preservation of health among those suffering from myhre syndrome, who primarily (but no exclusively) reside in the uk, through the provision of: a) advice, counselling and support to those suffering from myhre syndrome. b) information sharing programmes to raise awareness on all aspects of myhre syndrome. c) support to develop medical practices relating to the diagnoses and treatment of myhre syndrome. 2) to relieve the needs of those suffering from myhre syndrome, and their families, who primarily (but no exclusively) reside in the uk, through the provision of respite, advice and support.
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