Website: http://www.hopeforhasti.org
Finances:
Objects:
the objects of the cio is:for the public benefit, the relief of sickness and the preservation and protection of good health among people suffering from cornelia de lange syndrome (cdls) in particular by: (1) providing grants of financial assistance to organisations and individuals undertaking research into cornelia de lange syndrome (cdls) anywhere in the world, the useful results of which will be disseminated for the public benefit.(2) establishing and operating a patient registry for persons suffering from cornelia de lange syndrome (cdls) anywhere in the world as a means to support clinical trials, studies and research into the condition.
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