Website: http://WWW.GPAC-PORPHYRIA.ORG
Finances:
Objects:
for the public benefit, to relieve the needs of patients suffering from porphyria worldwide, in particular, but not exclusively, by providing support and information to patients and patient groups, and by raising awareness of the disorder amongst health professionals, policy makers and the general public, including by providing information about the porphyria group of diseases, their diagnoses and treatments, promoting research and sharing the useful results of latest research.
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