Website: https://cureclcn4.org
Finances:
Objects:
the objects of the charity are:(a) the advancement of health, relief of sickness and saving of lives by such means as the trustees see fit including but not exclusively through:(i) providing relief and assistance to people suffering from pathogenic variants of clcn4; and(ii) the funding of medical research anywhere in the world for the purpose of discovering, developing and delivering treatment for patients with pathogenic variants of clcn4; and(b) the furtherance of such other charitable purpose or charitable purposes as the trustees in their absolute discretion from time to time think fit, in each case for the public benefit.
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