Website: http://www.ttpnetwork.org.uk
nationally and internationally
voice
healthcare professionals
diagnoses
consultations
thrombocytopenic purpura
advocacy international
Finances:
Objects:
the objects of the cio are:-to relieve the needs of persons experiencing or affected by thrombotic thrombocytopenic purpura (ttp) in the united kingdom and the republic of ireland with an international reach. in particular but not exclusively, by:-the provision of information, advice, support, representation and advocacy in the interest of social welfare, to improve equity of access to treatments, preserve life and to improve the quality of life;promoting best practice and the advancement of education of ttp in relation to the cause, diagnoses, prevention, alleviation, treatments and cure by raising awareness and providing information to the public and healthcare professionals nationally, and internationally;representing the patient voice and strengthen patient advocacy on uk and international government and non-government departmental bodies and in consultations;promoting public support and providing assistance for the carrying out of research by making grants for the benefit of patients with ttp;generating income through fundraising activities for the purpose of improving patient care;engaging in nonpartisan political activity provided that the trustees are satisfied that the proposed activities will further the purposes of the charity to an extent justified by the resources committed and the activity is not the dominant means by which the charity carries out its objects; andinterfacing with other charitable organisations and corporate partners to collaborate for the benefit of patients and their families.nothing in this constitution shall authorise an application of the property of the cio for the purposes which are not charitable in accordance with [section7 of the charities and trustee investment (scotland)act 2005] and [section 2 of the charities act (northern ireland) 2008].
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