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Alexandra Murphy Hht Foundation

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Website: http://alexandramurphyhht.foundation

What does this charity do?

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health search

pulmonary

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diagnosis

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treatments

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hereditary

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symptoms

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telangiectasia

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malformations

Finances:

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Objects:

the relief of sickness and the advancement of health of hht (hereditary haemorrhagic telangiectasia) sufferers, more specially those who suffer from pulmonary avms (arteriovenous malformations) in particular, but not exclusively by:a) raising awareness of hht and pulmonary avms, the symptoms associated with it andtreatment.b) promoting research into the understanding, diagnosis, cause, and treatment of hht and pulmonary avms through treatments and grants related to research projects in order that the useful results of research are disseminated for public benefit.c) providing support to patients and families suffering from hht in any way the trustees think fit.

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